Five days ago on the way to the supermarket I felt a disturbing quiver in my lower lip, then a slight numbness comparable to the sensation when the dentist swabs something on your gum before giving you a shot to deaden your mouth. The next few days it was more like the contractions from theContinue reading “ALS Diary (part three): Reading the signs of ALS; reading myself into Riker’s Guest Lecture.”
Tag Archives: ALS Diary
ALS Diary (part two): Surprises and Disappointments
My family needs to take things one step at a time in order to avoid a crippling anxiety. This leaves all planning and preparations to me. My strategy now is to make advance preparations for the summer. I’ll spend most of May in Paris where I still have work to finish and friends to visit.Continue reading “ALS Diary (part two): Surprises and Disappointments”
An ALS Diary (part one): On Being Overtaken by a Rare Incurable Disease
Within the interval of a year I went from a vigorous and strong 74-year-old to the stricken and failing sufferer of the rare disease of amyotrophic lateral sclerosis, ALS, also known as Lou Gehrig’s disease. My benchmarks were solo journeys I undertook, first in May, 2021, to rescue my son in Hawaii, then in AugustContinue reading “An ALS Diary (part one): On Being Overtaken by a Rare Incurable Disease”
Normal Thoughts 