ALS Diary (appendix D): Hospice

For two weeks since the beginning of April, I’ve had a urinary catheter. Yesterday my wife agreed to allow a representative of the hospice service to visit and explain how it works. The nurse and case manager has paid her visit now I was satisfied and Veronika hit it off with her especially well, so it is all good. My momentary woe is this unusual ALS-conditioned constipation that constantly simulates a bowel movement that then doesn’t follow. But the upside of things is that we can now count on the practical help of a skilled and approachable nurse. Urs and Didier sent heartening messages. Urs in particular is both completely frank about death and very affectionate. The two go together. Without the frankness the cordiality might be hollow.

Before Veronika leaves I make three rounds with the walker. I need to exercise regularly. It’s become noticeably harder to do. The goal will be doing anything on my feet.

Signed,

Andrew (Weeks)

Published by pfannkuchea

A graduate student at the University of Luxembourg, I study the French Third Republic and liberalism more generally.

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