You could compare the trajectory of my ALS decline to the descent of a plane that has lost power. First comes the long smooth decline, then you graze the tallest tree crests. The flight is no longer smooth but it’s not yet the crash. Two weeks ago I began to suffer constipation which made me wonder if the muscles that serve the purpose of expelling stool were atrophying. As I got over the constipation, I began to pee with great difficulty and soon with pain. Yesterday I went, in considerable pain, to the Emergency Room where they drained what looked like a gallon of dark rum out of me. Now I have a permanent, or perhaps temporary for a matter of days, catheter. It’s a great relief. Old friends were here just now and my mood was restored.
I’m losing the use of my hands. I slept exceptionally well with the catheter last night, but my body is tired with that special ALS exhaustion. Outside it’s early spring. Tomorrow is Easter. Will I live until summer? Perhaps I have some good news for my fellow sufferers: there is still no pain. I breathe, I swallow and I drink without choking. My mobility and dexterity are very limited, but I can sit or lie comfortably and read or chat.
Signed,
Andrew (Weeks)
Normal Thoughts 